I was just reading an old post I’d written about transplant working things, and was amazed it was around 4 months ago! It’s crazy how long this process take as I don’t feel like I’m much further along in that time.
I’ve done all my tests, which included:
Dopplers on a few major veins – Very easily done, just had to lay there. Also had a nice students doing it, which lead to a conversation about studies as I’m a health student too. They also thought I was pregnant for a few briefs moments, which was not as relaxing for me.
Chest x-Ray and renal ultrasound – These were done at the same time at my local hospital. They wanted me to come in with a full bladder for the ultrasound, which is a little impossible if your kidneys don’t produce urine, so cue a few awkward conversations with receptionists that I had to explain this too. The ultrasound was also a bit strange so I’ve had to see a urologist about it, and have a CT and cystoscopy, which I’m still completing.
Bloods and ECG (or EKG is you’re American) – The bloods were done at my renal unit, so I didn’t have to wait at all, but the ECG I had to go to a normal pathology place, and it was packed. Surprisingly I didn’t have to wait for long, but I’ve never had to specifically go somewhere for an ECG before- it’s always were done as apart of something, or at the renal unit. The pathology place I went was also were I went for another test before I was diagnosed when I wasn’t able to get food down, and the lady I saw then was very rude and keep acting like I purposively not acting, was going to not do to test properly, and basically made me feel terrible when I was already in a pretty bad way, so I wasn’t really keen to go back there.
TB skin test – Had to go in twice- once to get to solution injected under my skin, and another for it to be checked. Relatively simple, though the nurse was abrupt when asking questions. She wanted to know if I’d lost weight recently, and when I said yes, and went to explain why (i.e. my kidneys had stop working, and I almost died), she didn’t really want to hear it.
Dental review – Got my dentists to email my last clean information to my coordinator
Cardiac echo – Decidedly not fun. I discovered how unfit I now am, and hopefully will not have to find out ever again. The staff were also not great. It was basically me speed walking on a treadmill with no shirt on and an open at the front hospital gown. Which I really didn’t think was necessary. I wouldn’t have been hard to loosely tie it up, and then undo it later when needed, and they kept telling me to leave it open, so it was me standing half naked for no real reason, and all these people keep coming in and out of the room. They also didn’t tell me that they wanted me to lay back down on the bed straight away, so when I finished it was a weird half being pushed to where they wanted me to go.
Pap smear – It was generally like a pap smear. Not particularly comfortable, and you’re glad it’s only needed every two years. At least this time the doctor did it right.
So after all of this I saw two transplant surgeons/doctors who come down from the Sydney hospital where they do the surgeon. One of them said I’ll probably had to go on a different type of anti-rejections medication as my kidney biopsy I had done when I said got sick showed a weird tissue, which could turn into a different disease thing, and the usual medications make it more likely. It’s half an ‘oh great, now what’ moment, and half doesn’t sound like a problem. I don’t really know when I’m going on the waiting list as I’ve done everything I think I need to, and my Dad has made appointments to see a transplant coordinator in Canberra (as they live a bit away from me, and it’s closer for them. Plus they can’t see the same doctors as me anyway), as well as done a few bloods tests. I think were going to begin tissue typing blood tests after he’s seen his doctors, and you never know I might actually get a transplant next year if all goes well.